This story seemed like a good one to kick off the New Year, since so many of us probably set some fitness goals. I also thought that I’d let Alice tell it in her own words.
I am 80 years old and this morning, like nearly every other morning for the last 65 years, I began my day by exercising. When I first started, I never thought about doing this forever – it just sort of happened. Here’s how it all started:
When I was 15, I had a gym teacher whose name was Gertrude Jordan. I liked Miss Jordan, partly because she seemed like a real person – a woman who could kick off her shoes because her feet were tired, or a woman who might cry at a movie or laugh at some silliness. She was also nice looking – not a beauty – but nice looking, and she wore really cute gym clothes.
Miss Jordan emphasized a number of times during school that year that we (a class of all girls) would look and feel better if we took care of ourselves, exercising even minimally. Well, I doubt that I cared if I would feel better, but looking better was very appealing. We exercised as a class when the weather prevented us from playing sports outside. I hated the outside stuff as I was clumsy, uncoordinated, and totally disinterested in ball games, but the exercises were to my liking and something I could do quite well.
I thought I would give this a try: some sit-ups, some push-ups, touching my toes, windmills, and deep knee bends. These were things I could do in my bedroom with no one the wiser, and they cost nothing and could be done at anytime. I started with 25 of each and found I enjoyed this more than I imagined. It gave me a sense of accomplishment and a feeling of well being.
As time passed I added more. I settled on 50 each – sit-ups, push-ups (military style – no knees), windmills, and toe-touches, and I rarely missed a day, other than time outs for some surgeries and toward the end of my three pregnancies. The day after I got home from the hospital after giving birth to my youngest child, I was down on the floor doing sit-ups when my mother came into the room. She gasped when she saw me. I’m sure she was either impressed or convinced I had lost my mind. A few years later she caught me exercising the day after I was discharged from the hospital after having surgery. She pleaded with me not to hurt myself. I think she was afraid I would need to go back to the hospital and she would be left caring for my children.
My routine has never taken much time, and it has always been easier to exercise in the morning. When my husband and I first married some 30+ years ago, he said he didn’t know if he would become accustomed to having me leap out of bed, throw myself on the floor, and do sit-ups. (Many adjustments in marriage.)
When I was nearing my 60th birthday, I thought I would just stop, that I had done this for a lot of years, and that I had done pretty well. But a voice in my head said, “Do not be foolish; do not stop. Do more.” So I continued. I also decided to start doing the same number of sit-ups as my age. I now do 80 sit-ups, 50 push-ups (still with no knees), 50 toe-touches (I can’t quite reach anymore, but I still try), 50 windmills, and stretch with my arms high above my head many times – probably 50 or so. I just keep stretching until I am awake, alert, and ready for the day. Am I healthy? You betcha! Do I look good? I think so. I look my age, but good. I am 4' 10" and weigh 100 pounds.
I could never have been a tennis player or a jogger or a tap dancer, but I did find something I could do and that I liked. Thank you, Miss Jordan.
Here are some details Alice didn’t include:
Alice was a working single mother for 19 years, raising three children. Through her working years she did her exercises at about 5:00 a.m. each day. When she retired at age 74 (and a half) she began sleeping in until 6:00 a.m., so she does her routine “late” now.
Alice has had four kinds of cancer. After surgery for ovarian cancer at age 65 the surgeon told her that internally she had the body of a 35-year-old, and that her abdominal muscles were so developed he had a hard time getting through. He thought he might need a machete. She liked that. When she was 68 the cancer came back and she had more surgery. When she came to in the recovery room the first thing she asked was when she could do her sit-ups.
A few years ago and quite awhile after the fact, one of her doctors told her that he and his colleague had figured that she had less than a 20% chance of surviving three years after her initial ovarian cancer diagnosis. Three years later, when the cancer came back, they thought she had less than a 5% chance of living past three years. To save you the calculation time, that’s 15 and 12 years ago.
Alice and I had some conversations throughout her bouts with cancer. One in particular stands out. I called to see how she was doing. She said that when she had gone to the doctor that day, she was too weak to lift her foot up to step on the scale. I asked if she had gone to work. “Of course!” was the reply. I asked if she had exercised that morning. “I did, but I could only do a few sit-ups.”
And while I’m telling tales out of school I will tell you something else for which I may take some serious grief: there’s no way in the world she’s 4’ 10”. She’s 4’ 8” on a good day.
I think Alice was the inspiration for the Energizer Bunny.
P.S. Alice is my mother. No, unfortunately, dedication and a love for exercise are not genetic.
Tuesday, January 5, 2010
Tuesday, December 8, 2009
Christa
Christa’s seven-year marathon ended right before Christmas. Her death hit us hard. We grieved for her and for her husband; we ached for her son and daughter who would grow up without their mom. To help us express our feelings about Christa we made a memory book to give to her family. The book had words like brave, optimistic, persistent, determined. Those words showed up over and over again. They defined this woman who fought so hard for so long.
None of us knew Christa when she was well, however. She and her husband and daughter moved here a few months before she got sick. I moved here after they did, and I heard about them through church from the announcements and sign-ups passed around to help the family. I saw Christa occasionally from a distance and even from far away during the early years of her ordeal, it was clear that she was seriously ill. We met when she was hospitalized with pneumonia and I visited her as the new president of the church’s women’s organization. She was terribly ill and looked it, yet all of them – Christa and her husband and children – were taking her hospital stay in stride. At four years into her illness, this was the cadence of their lives. And Christa – she had a fight within her that was unparalleled. Besides, a simple case of pneumonia and a few days in the hospital were nothing compared to all she had gone through.
Christa’s journey began when she started feeling numbness in her feet when she was pregnant with her son. She was thirty and her daughter was two. On Christmas Day, less than three months after her son’s birth, and after puzzling and progressive symptoms, doctor visits, and a hospital stay, Christa could barely breathe or walk. She was hospitalized. She was put on a ventilator and became paralyzed from the neck down. She suffered a stroke. Her skin turned purple, she rapidly gained 40 pounds, and the doctors drained fluid from her body daily. Finally she was diagnosed with a rare disease called POEMS syndrome. The treatment was aggressive chemotherapy. She spent the next five months in three different hospitals. Along the way, she developed another rare disease that caused two more strokes and resulted in two brain surgeries.
When she was finally able to return home, breathing on her own, Christa was still paralyzed. Family and new-found friends from church helped with everything – cooking, cleaning, caring for the children, her personal needs. If she wanted to feel her son, someone had to hold him against her face. Yet despite her limited abilities, Christa was in charge – directing how things should be done. This was her home, her domain, and she was organized and particular. She was determined to retain whatever small degree of control she could.
Eventually, Christa recovered enough to get around with a walker and braces, although she was still very ill. The spiky wig, stylish clothes, and manicured nails all provided clues as to who she was. It was kind of an in-your-face attitude toward her illness. But her challenges weren’t through. She developed leukemia, the most serious type, which resulted from the earlier chemotherapy. This led to a successful bone marrow transplant that took place several states away, which meant Christa was away from her family for several months with only a web camera to connect them.
For the last couple of years of her life, Christa was back in a wheelchair. She had developed graft versus host disease from the bone marrow transplant and it significantly affected her lungs, which meant that breathing was difficult. It also meant that talking was difficult, moving was difficult, everything was difficult. Her arms and hands had been affected, too, although I don’t know what that was from. She could use them, but her hands seemed frozen in an unnatural position. None of this kept her from being a wife, a mother, a friend. She took the kids to school. She folded the laundry. She went to every school event and soccer game. She fixed dinner. It often took her all day, but she fixed dinner because she was going to do as much for her family as she could. We tried to get her to accept more help in those last few years. She wouldn’t accept it. When one of her friends had twins, she took dinner to the family because they had helped her family out during her illness and she wanted to return the favor. Perhaps she complained about how hard her life was, how she had one of the unluckiest hands ever dealt. That’s not a side any of us saw, though.
Several times throughout the years, the doctors thought Christa wasn't going to make it. They didn’t fully know her, either. It wasn’t luck that kept her around; she fought with everything she had. She had a family to care for and she wasn’t about to give up. And she wasn’t just going to survive her ordeal – she was going to live. When she was healthy she had been an avid snow skier; she had owned a house cleaning business. Of course she couldn’t engage in those activities anymore, but that didn’t mean that Christa gave up living an active life. Someone ran into them on a snowy hike in the mountains on a trail with wheelchair access. Someone saw them at Disneyland. She went on a cruise. And then there were the regular trips to Costco, with Christa riding on a large, flat cart as though it was her own personal sled. This may make it sound like Christa was an otherwise healthy woman who happened to be in a wheelchair. That was not the case. She was a very sick woman and that was readily apparent to anyone who saw her.
Toward the end of her life, her lungs were functioning at a mere fraction of capacity. She still fought. What thirty-something woman wants to leave her husband and children? She needed a lung transplant, but her body was so battered. She had wrung every last ounce of usefulness out of it and she wasn’t a candidate. The doctor who had treated her from the start told her goodbye. She continued to fight.
During Christa’s last hospitalization, a few of us helped her children decorate the house for Christmas. When we put the presents under the tree, we thought that some elderly relatives had sent gifts. But the scrawl on the tags was Christa’s. She had somehow managed to purchase and wrap presents. Although she hadn’t know it when she bought them, those were the presents her husband and children would open after her funeral.
The night before she died, Christa tricked several people into thinking she wanted some coffee – which she didn’t drink because of her religious beliefs – then joked about fooling them. This from a woman who could barely talk. These two incidents were a fitting period to the end of her story. They were pure Christa. She was still giving to her family, still engaged in life, and still eking out pleasure.
Christa’s life was a lesson to all of us about focusing intently on what is most important in life – family. It was a lesson on looking forward and fighting to do what you can, regardless of your circumstances and limitations. It was also a lesson on what really constitutes a problem. You simply could not be around Christa and think you had any when you saw all she went through.
Like many inspiring women, there are co-heroes in her story: her husband first and foremost. You cannot read this story without having an inkling about his love and devotion during those seven years. Her mom, step-mother, and mother-in-law; her sister; and the many women who became her friends as they helped throughout the years. While these women may not have known Christa when she was well, they definitely knew her. Brave. Optimistic. Persistent. Determined.
_____________________
If you would like to comment on Christa's story, or share your memories of her, please do so.
None of us knew Christa when she was well, however. She and her husband and daughter moved here a few months before she got sick. I moved here after they did, and I heard about them through church from the announcements and sign-ups passed around to help the family. I saw Christa occasionally from a distance and even from far away during the early years of her ordeal, it was clear that she was seriously ill. We met when she was hospitalized with pneumonia and I visited her as the new president of the church’s women’s organization. She was terribly ill and looked it, yet all of them – Christa and her husband and children – were taking her hospital stay in stride. At four years into her illness, this was the cadence of their lives. And Christa – she had a fight within her that was unparalleled. Besides, a simple case of pneumonia and a few days in the hospital were nothing compared to all she had gone through.
Christa’s journey began when she started feeling numbness in her feet when she was pregnant with her son. She was thirty and her daughter was two. On Christmas Day, less than three months after her son’s birth, and after puzzling and progressive symptoms, doctor visits, and a hospital stay, Christa could barely breathe or walk. She was hospitalized. She was put on a ventilator and became paralyzed from the neck down. She suffered a stroke. Her skin turned purple, she rapidly gained 40 pounds, and the doctors drained fluid from her body daily. Finally she was diagnosed with a rare disease called POEMS syndrome. The treatment was aggressive chemotherapy. She spent the next five months in three different hospitals. Along the way, she developed another rare disease that caused two more strokes and resulted in two brain surgeries.
When she was finally able to return home, breathing on her own, Christa was still paralyzed. Family and new-found friends from church helped with everything – cooking, cleaning, caring for the children, her personal needs. If she wanted to feel her son, someone had to hold him against her face. Yet despite her limited abilities, Christa was in charge – directing how things should be done. This was her home, her domain, and she was organized and particular. She was determined to retain whatever small degree of control she could.
Eventually, Christa recovered enough to get around with a walker and braces, although she was still very ill. The spiky wig, stylish clothes, and manicured nails all provided clues as to who she was. It was kind of an in-your-face attitude toward her illness. But her challenges weren’t through. She developed leukemia, the most serious type, which resulted from the earlier chemotherapy. This led to a successful bone marrow transplant that took place several states away, which meant Christa was away from her family for several months with only a web camera to connect them.
For the last couple of years of her life, Christa was back in a wheelchair. She had developed graft versus host disease from the bone marrow transplant and it significantly affected her lungs, which meant that breathing was difficult. It also meant that talking was difficult, moving was difficult, everything was difficult. Her arms and hands had been affected, too, although I don’t know what that was from. She could use them, but her hands seemed frozen in an unnatural position. None of this kept her from being a wife, a mother, a friend. She took the kids to school. She folded the laundry. She went to every school event and soccer game. She fixed dinner. It often took her all day, but she fixed dinner because she was going to do as much for her family as she could. We tried to get her to accept more help in those last few years. She wouldn’t accept it. When one of her friends had twins, she took dinner to the family because they had helped her family out during her illness and she wanted to return the favor. Perhaps she complained about how hard her life was, how she had one of the unluckiest hands ever dealt. That’s not a side any of us saw, though.
Several times throughout the years, the doctors thought Christa wasn't going to make it. They didn’t fully know her, either. It wasn’t luck that kept her around; she fought with everything she had. She had a family to care for and she wasn’t about to give up. And she wasn’t just going to survive her ordeal – she was going to live. When she was healthy she had been an avid snow skier; she had owned a house cleaning business. Of course she couldn’t engage in those activities anymore, but that didn’t mean that Christa gave up living an active life. Someone ran into them on a snowy hike in the mountains on a trail with wheelchair access. Someone saw them at Disneyland. She went on a cruise. And then there were the regular trips to Costco, with Christa riding on a large, flat cart as though it was her own personal sled. This may make it sound like Christa was an otherwise healthy woman who happened to be in a wheelchair. That was not the case. She was a very sick woman and that was readily apparent to anyone who saw her.
Toward the end of her life, her lungs were functioning at a mere fraction of capacity. She still fought. What thirty-something woman wants to leave her husband and children? She needed a lung transplant, but her body was so battered. She had wrung every last ounce of usefulness out of it and she wasn’t a candidate. The doctor who had treated her from the start told her goodbye. She continued to fight.
During Christa’s last hospitalization, a few of us helped her children decorate the house for Christmas. When we put the presents under the tree, we thought that some elderly relatives had sent gifts. But the scrawl on the tags was Christa’s. She had somehow managed to purchase and wrap presents. Although she hadn’t know it when she bought them, those were the presents her husband and children would open after her funeral.
The night before she died, Christa tricked several people into thinking she wanted some coffee – which she didn’t drink because of her religious beliefs – then joked about fooling them. This from a woman who could barely talk. These two incidents were a fitting period to the end of her story. They were pure Christa. She was still giving to her family, still engaged in life, and still eking out pleasure.
Christa’s life was a lesson to all of us about focusing intently on what is most important in life – family. It was a lesson on looking forward and fighting to do what you can, regardless of your circumstances and limitations. It was also a lesson on what really constitutes a problem. You simply could not be around Christa and think you had any when you saw all she went through.
Like many inspiring women, there are co-heroes in her story: her husband first and foremost. You cannot read this story without having an inkling about his love and devotion during those seven years. Her mom, step-mother, and mother-in-law; her sister; and the many women who became her friends as they helped throughout the years. While these women may not have known Christa when she was well, they definitely knew her. Brave. Optimistic. Persistent. Determined.
_____________________
If you would like to comment on Christa's story, or share your memories of her, please do so.
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